Family Associations and Disability: roles, motivations and purposes. A Scoping Review

Abstract

The experiences of discrimination and the lack of social services and policies since the late 1960s have prompted many families to unite for the respect of the rights of people with disabilities and their parental figures. Along with the political dimension, the implications and pedagogical meanings of the associations have also grown, becoming the object of interest of Special Pedagogy. The need to rethink welfare from a perspective of inclusiveness and territorial proximity requires an update of the state of the art on the phenomenon of associations of families of children with disabilities at a national and international level. The Scoping Review intends to answer following question: What social roles do the associations of families with children with disabilities take and what motivations and purposes today at national and international level?

The results highlight a knowledge gap on the subject in the literature, opening up wide research margins for Special Pedagogy.

Key-words: Scoping Review, Family Associations, Children with Disabilities, Inclusion.