Le buone X prassi: uno studio esplorativo

  • Valentina Paola Cesarano Pensa MultiMedia Editore

Abstract

The Italian Association of Fragile X Syndrome has been activating the “Good X Practices for Families” for some years in some regions, which aims to identify good practices based on good examples provided by the families of people with Syndrome of fragile X. The meetings held in the Campanian context, were recorded and uncoiled audio in order to carry out a qualitative analysis of this material using the Nvivo software (Richards, 1999) in the perspective of the Grounded Theory (Glaser, Strauss, 1968). The qualitative analysis made it possible to highlight the difficulties of children and young people with the fragile X syndrome, in achieving autonomy. Missing a professional orientation that allows young people to identify their own path that points to their potential and interests; there are no bodies that can give support not only to people with the syndrome but also to their families, there is also a lack of training for support teachers and curricula. The qualitative analysis has also made it possible to highlight the abilities and potential of children and young adults who present the fragile X syndrome; we talk about people, each one different from the other, each with its own uniqueness.

Pubblicato
2019-12-30
Sezione
III. ESITI DI RICERCA (a. ricerca qualitativa e quantitativa; b. Strumenti e metodologie)